Speakers

Ava August

Christel Marchand Aprigliano

Delia Huffman

Ava August is an 11 year old singer/ songwriter from Southern California. She was diagnosed with Type 1 Diabetes at the age of four. Despite the obstacles and challenges of living with T1D she has managed to not let it get in the way of her dreams and aspirations. She wrote her first song at the age of 9 called You Let Me Fly. The song is about flying to a dream world for a day without T1D. Since then she has written several other songs. A couple can be found on iTunes. She plays the ukuele and the piano, and has performed The National Anthem at several sports events. You can follow Ava August on her  instagram called @avaaugustofficial and her YouTube channel called Ava August.

 

Christel Marchand Aprigliano was diagnosed in 1983 with type 1 diabetes and spent her early years wishing it would simply "go away." She now devotes her efforts to many diabetes advocacy and peer support initiatives as the CEO of Diabetes Patient Advocacy Coalition (DPAC), a non-profit dedicated to amplifying the diabetes voice on federal and state policies; Founder of The Diabetes Collective, Inc., which produces The DiabetesUnConference; a member of Florida's Diabetes Advisory Council, and as a consultant for healthcare companies. You can find her thoughts on life with diabetes on her popular personal blog, www.theperfectd.com.

 

Delia Huffman was diagnosed with Type 1 diabetes (T1D) on June 10, 2006 at age 13. Though she has been living with T1D for almost 11 years, Delia considers herself fairly new to the diabetes community. Like many T1D's that are diagnosed as teens, Delia struggled with denial of her diabetes for almost 9 years. It took many complications & multiple hospitalizations before she finally made a conscious decision to take control of her life with diabetes instead of letting diabetes control her life.  Involved in the Performing Arts community since her first dance class at age 2, Delia pursued a career in acting, modeling, & dancing throughout her childhood. Today, Delia is a talent manager & Senior Booking Agent at a full service talent agency called Professionally Pretty.

 

Elizabeth Forrest

Mary Lucas

Rachelle Stone

Diagnosed with type 1 diabetes at 10 years old, Elizabeth Stein was determined to not let diabetes negatively impact her life. As a direct result, Elizabeth created nonprofit organization, “Dancing for Diabetes.”

As a student in Holley Ricker’s dance class at Millennium Middle School in Sanford, Florida, Elizabeth was inspired to host a show to raise funds but more importantly, spread awareness. Elizabeth approached then Middle School Principal, Walt Griffin and found immediate and enthusiastic support. What started as a small neighborhood event quickly transformed into a large annual production and then further into a year round 501c3 nonprofit organization. In the fall of 2017, Dancing for Diabetes will produce its 17th annual show.

 

 

Mary Lucas was diagnosed with Type 1 in 1998 at the age of seven, and despite having the disease for 18 years now she still approaches each day with a smile and a sunny outlook. She attended Parsons the New School for Design in New York where she studied fashion design with a focus in Childrenswear. Now in her role as Community Partners + Programs Manager, Mary loves connecting and sharing stories, tips and tricks with other Diabetics. She grew up around philanthropy and is passionate about living well with T1D, finding a cure, growing Beyond Type 1, and her French Bulldog Lola! Find her on instagram @MaryAlessandraa.

 

Rachelle is a physician assistant who currently works at University of Central Florida Student Health Services. She practices primary care medicine with a focus in treating students with type 1 diabetes during the transition into college. She leads an on campus educational and support group for students with type 1 diabetes called UCF Type 1. Rachelle earned both a bachelor of health science degree and a master of physician assistant studies degree from the University of Florida. In addition to her clinical expertise she has had type 1 diabetes for 19 years. Her special interests include staying healthy through exercise and healthy lifestyle, participating in multiple sports, and traveling.

 

Samantha Arceneaux

Trisha Artman

Zippora Karz

Samantha Arceneaux is a self-described national volunteer insurance diabetes advocate, specializing in CGM's and pediatric patient pumps. Specifically, she helps those with Type 1 diabetes navigate through understanding their insurance benefits, claim denials and appeal options. Samantha  also devotes time ghostwriting for individuals and organizations who are seeking insurance policy changes and/or coverage of services. Additionally, she has written for and/or contributes to Arden's Day, the JuiceBox podcast, Beyond Type 1 and her informational blog. Samantha has many family members with T1D, including her 6 year old daughter Mikayla, a Dancing for Diabetes participant and Dexcom Warrior.

 

 

 

Trisha Artman, Board Certified Health Coach—Trisha is a motivated diabetes coach, educator, and writer. With personal diabetes experience, compassion, and professionalism, she nurtures trusting relationships—promoting healthy changes in an empowered environment.

 

Trisha educates people about the value of their body, how to tune into their inner voice, and how to live every day—not defined by their disease, but instead as a WHOLE person.

 

 

 

 

Zippora Karz is a former soloist ballerina with the New York City Ballet where she performed for 16 years on stage and in televised performances. She was featured in a variety of roles choreographed by George Balanchine and Jerome Robbins as well as works choreographed for her by such choreographers as Peter Martins and Lynne Taylor Corbett. Today, as a repetiteur for the George Balanchine Trust, Zippora stages Balanchine ballets for schools and companies around the globe. Diagnosed with juvenile diabetes at the age of 21, she is passionate today about motivating others to take care of themselves and live their dreams. She is the author of, The Sugarless Plum, as well as her children’s story, Ballerina Dreams.

 

 

Sarah Scott

Lauren Adams

Casey Barnhardt

Sarah Scott was diagnosed with type 1 in 1981 on her 10th birthday. In her twenties she felt blessed to be living a complication free life, so decided to make it her mission to help others live the best life they could with diabetes. She finished her BSN in nursing in 2004 and began working with children living with diabetes. She left the pediatric world 4 years ago and today works as the clinical diabetes specialist for Tandem Diabetes Care helping people learn and use the insulin pump. She has been a volunteer at the Florida Diabetes Camp for 25 years (nurse for 13 years). She spent a semester in Spain while studying at the University of Florida, finished 2 marathons, and loves to travel. She practices what she preaches - which is T1D should never stop anyone from following their dreams.

 

 

 

Lauren Adams was diagnosed in 1992 with Type 1 at the age of 11. As a certified diabetes educator for a medical device company and an elite runner for Team Novo Nordisk, she works to inspire, educate, and empower people with diabetes. Despite running in high school and college, it wasn't until after having her two boys that she gained the confidence to set a goal to qualify and run the Boston marathon. She ran Boston in 2016 and looks forward to many more years of running. Find her on Instagram @marathonmamatype1dm

 

 

 

Casey Barnhardt was diagnosed with type 1 diabetes at the age of 21.  Upon receiving a diagnosis she didn’t think was possible at an older age, Casey took to learning all she could about T1D as has adjusted well to what became her new normal.  She found the JDRF website to be one of the most helpful for understanding Type One and decided to begin a volunteer internship with the Central Florida Chapter, which led to a staff position in 2015.  At JDRF she is focused on the outreach efforts of the chapter and heads up the organization of their annual TypeOneNation Summit.  As challenging as having T1D is, Casey enjoys the unique connection it gives her to others also affected by the disease.

 

 

 

Jisel Parra

Penelope Pauley, MD

Kim Rossi

“Life is sweet, you just got extra!”

 

Jisel Parra has been living with Type 1 Diabetes for almost 15 years. She was diagnosed with Type 1 at the age of 15 and since then she has had a passion to raise awareness about the disease.

 

Jisel has found a way to spin the everyday frustrations and intricacies of living with type 1 diabetes into a life full of purpose. As young mother of a toddler and another on the way, a wife and corporate professional, life can get challenging, but in the end she realizes that there is a silver lining to everything.

 

In 2016, Jisel founded A Tad Too Sweet. A medical ID jewelry company that encourages individuals with Diabetes to bring awareness to the condition without compromising their sense of style. Check out her designs by visiting the website below! www.atadtoosweet.com

 

 

 

 

Penelope Pauley, MD, is a pediatric endocrinologist at the Arnold Palmer Hospital Endocrinology and Diabetes Center. Dr. Pauley is board certified in pediatrics and pediatric endocrinology. She is also a certified diabetes educator and a certified diabetes technology clinician.

 

In addition to caring for patients at Arnold Palmer Hospital, Dr. Pauley serves the community through volunteer work, including serving as a member of the board of directors of the Juvenile Diabetes Research Foundation, Central Florida Chapter. She has received multiple awards and honors, and has been published in numerous peer-reviewed journals.

Dr. Pauley is a member of the American Academy of Pediatrics, National Hispanic Medical Association, Endocrine Society, American Association of Clinical Endocrinologists, Pediatric Endocrine Society, American Diabetes Association, Diabetes Technology Society and American Association of Diabetes Educators.

 

 

 

 

 

Kim Rossi is a native to Florida and grew up in Orlando and then Lake Mary. She spent most of her childhood dancing at Southern Ballet Theatre, which is now known as Orlando Ballet. She was a featured dancer in a TV special for the New Kids on the Block. She then became a special events choreographer for Disney.

 

Kim has 2 children and in 2002 her life changed forever when her then 4 year old daughter was diagnosed with Type 1 Diabetes. She continued to teach dance and moved to Las Vegas but she soon realized she had a new passion, diabetes. She took a job at a county hospital in Las Vegas and became the sole diabetes educator in the hospital and pediatric diabetes clinic.

 

Kim returned to Central Florida to work as a diabetes educator at Nemours Children’s Clinic. She became the Diabetes Program Coordinator and now coordinates education for over 800 children with diabetes at both the clinics and at the Nemours Children’s Hospital. Mrs. Rossi is honored to help care for these children and families with diabetes as well as her now 19 year old daughter. She hopes families can benefit from her experience as not only a certified diabetes educator but also as a parent of a child with diabetes.

 

Christina Torres, RN, BSN

Ginger Malcom

Christina Torres, RN, BSN is a Certified Diabetes Educator at Arnold Palmer Hospital Pediatric Endocrinology & Diabetes Center. Christina graduated from the School of Nursing at the University of Central Florida in 2006 and became a nurse at Arnold Palmer Hospital for Children.

 

In 2011 she pursued a career in diabetes and became certified as a diabetes educator in 2013.

 

Christina has volunteered at Florida Diabetes Camp and various JDRF events throughout the community.

 

Diabetes education became a passion for her after experiencing first-hand the struggles and barriers to learning after her grandfather was discharged from the hospital on insulin. Additionally, Christina has an uncle who lives with type I diabetes.

 

Christina is committed to empowering children and families living with type I diabetes to live life to the fullest!

 

I am a native Floridian born and raised in Orlando. I attended UCF and received an undergraduate

degree is in Psychology, a Masters in Industrial/Organizational Psychology also from UCF a Masters from FSU in Visual Disabilities.

 

My background is in Community Relations with non-profits. My passion is LGBTQ youth, and I sit on two boards for agencies providing services to LGBTQ youth. I have been on the City of Orlando's Civil Rights Board for six years. I am also certified as a county court mediator and now provide mediation services every Tuesday at the Orange County Courthouse. I have been living with Type 1 diabetes for more than 43 years having been diagnosed at age seven. My years with diabetes have taken their toll, but accessible tools enable me to manage and control my diabetes with relative ease. I use a talking glucometer for checking my glucose levels and a Count-A-Dose for drawing my insulin doses.

 

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